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Assessment of Pain in Adults with Intellectual and Developmental Disabilities

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V

8. Apendices

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Appendices

APPENDIX I

The Non Communicating Adult Pain Checklist

Name of client________________________ Observer: ____________________

Date ______________ Regular grade when individual is not in pain ___________

The client’s behavior is being evaluated due to: ____________________________

_____________________________________________________________________

How often has the client showing the down listed behavior in the last 10 minutes.

Total score _________________

Very often Fairly

often Just a

little Not

at all Item description

Sub category Item

#

3 2

0 1 Moaning, whining, whimpering (fairly soft)

Vocal reaction 1

3 2

0 1 Crying (moderately loud)

2

3 2

0 1 Screaming\yelling (very load)

3

3 2

0 1 A specific sound or word for pain (for example, a word, a cry, or type of laugh)

4

3 2

0 1 Not co-operating, cranky, irritable, unhappy

Emotional reaction 5

3 2

0 1 Being difficult to distract, not able to satisfy or pacify

6

3 2

0 1 furrowed eyebrows, raising eyebrows

Facial expressions 7

3 2

0 1 A change in eyes including (Squinting of eyes, eyes

opened wide, eye frowning) 8

3 2

0 1 Turning down of mouth, not smiling

9

3 2

0 1

movements of the lips and tongue:

Lips puckering up, tight, pouting, or quivering, teeth grinding, tongue pushing,

10

3 2

0 1 Moving more or less

Body language 11

3 2

0 1 Stiff spastic, tense, rigid

12

3 2

0 1 Gesturing to or touching part of the body that hurts

Protective reaction 13

3 2

0 1 Protecting, favoring, or guarding part of the body that

hurts 14

3 2

0 1 Flinching or moving the body part away, being sensitive to touch

15

2 3 1

Moving the body in a specific way to show pain (e.g. 0 head back, arms down, curls up, etc’)

16

3 2

0 1 Change in facial color

Physiological reaction 17

3 2

0 1 Respiratory irregularities: Breath holding or gasping

18

The psychometric properties of the Non Communicating Adult pain checklist were evaluated with the scale as a whole. The separate use of sub scores was not tested and is therefore not

recommended

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APPENDIX II

The Non Communicating Children Pain Checklist-PV

(NCCPC-PV)

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APPENDIX III

APPROVAL DOCUMENT FROM THE ETHICAL COMMITTEE

AT THE UNIVERSITY OF HAIFA (Hebrew)

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APPENDIX IV

APPROVAL DOCUMENT FROM THE ETHICAL COMMITTEE

AT THE UNIVERSITY OF HAIFA (Translated)

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APPENDIX V

APPROVAL DOCUMENT FROM THE HAED OF THE DEPARTMENT FOR CARE FOR INDIVIDUALS WITH IDD,

MINISTRY OF SOCIAL WELLFARE (Hebrew)

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APPENDIX VI

APPROVAL DOCUMENT FROM THE HAED OF THE DEPARTMENT FOR CARE FOR INDIVIDUALS WITH IDD,

MINISTRY OF SOCIAL WELLFARE (Translated)

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APPENDIX VII

Permission letter to use and rename the NCCPC

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APPENDIX VIII

Faces pain Scale (Faces VAS)

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APPENDIX IX A comparative summary of all existing pain scales for individuals w ith IDD

Name FACS ESPCP NCCPC PICIC PPP PADS # of items 8 22;10 30; 6 20 18 Source Lachapelle, et al., 1999Giusiano et al., 1995; Collignon, et al., 1997 McGrath, et al., 1998; Breau, et al., 2000; Breau, et al., 2002 Stallard, et al., 2001 Stallard, et al., 2002

Hunt, et al., 2004 Bodfish et al., 2001 Phan et al. 2005 Population Adults with mild- moderate IDD Adolescents with CP & IDD Children with cognitive impairment

Non communicating Children Children with severe neurological and cognitive disability

adults with severe and profound MR Age range(mean) (49.6) 2-33 (16) 6-29 (14.5); 3-9; 3- 182+ (9.4); 2-21 (7.8)1-18 (9.9) --- N 40 100 20; 24; 71 49; 34 140 22;8 Type of pain Procedural Not specified Needle pain; long lasting pain Non specific – severe pain Not specified Procedural; Chronic Psycho- metric properties

Reliability Have not been testedHave not been tested

0.78 - 0.82 Have not been tested

0.74- 0.890.86 Internal consistency0.91-0.93 0.75 - 0.89--- Validity---Construct validityContent validity Specificity 0.81-0.741.00--- Sensitivity 0.88- 0.840.91---

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